Yesterday, the doctor gave Bart the green light to go home. Marie and i rushed to the hospital to pick up the patient. The doctor had car trouble (she knows how to pick her days) so she started of her day with huge delays/ She had to give the final ok. After waiting for 1,5 hours, we finally closed the door to room 8 for the last time. A very emotional moment. Then the walk to the exit and to the car. It was a lot further than he remembered but he made it. The car ride was somewhat different. Bart was amazed by the scenery, the sun & the rain. He thought the world had changed in the 36 days he was in the hospital. To Marie and me, it was still the same.

The children and I have created a Five Star service for Bart. We eat what Bart wants to eat. We watch on TV what Bart wants to watch. We sit with him when he walks on the treadmill. We wait in front of the door when he takes a shower. We walk with him when he goes from the living room to the kitchen. We bring him snacks and drinks. We basically never leave him alone. I presume, this will fade in time as we are reassured he’s really doing fine. For now, he has to live with it, he has no choice.

We also supervise the intake of all his medicine. And believe me, it it such an incredible amount, it is just insane.

Everything he eats, drinks, all medicine he takes, all physio and exercise he does, must be noted in a diary that he needs to show the doctor every week he goes to the hospital for his immune therapy. It reminds me of kindergarten. Then again, he’s only a couple of weeks old 🙂

The best thing about Bart being home is that I can kiss him again, hold his hand and look at him whenever I want. I am never letting him go again. He’s mine.

I hope you will have a great weekend. Don’t forget to enjoy life.