After his homecoming on Thursday afternoon , everything revolves around Bart. First special breakfast, then his medicine, followed by a first nap. At noon, second batch of medicine, lunch followed by second nap. Around 14:00 to the couch and time for some television. At 16:00, third batch of medicine followed by a short nap. At 18:00, fourth batch of medicine and dinner. Than fighting against the fatigue to stay awake until 22:00 to take the last batch of medicine.

Today he started his first session of immune therapy. At 09:30 we had to be at the hospital. Packed with his medicine for the day and drinks, snacks and lunch, we arrived on time, despite the traffic jams and the huge car pile up on the Brussels ring. It had a little bit of a first school day vibe.

Once settled in, they started with drawing blood. The results were good. All in the green. The doctor commended Bart on all the positive results. Kidneys : ok, liver : ok, blatter : ok.

The all clear for starting the immune therapy was given. Five bottles given through the drip. Thirty minutes per drip. At 13:00 he called to pick him up. He was doing great so I thought it was time for a little detour. I dropped Bart off at his parents condo, just to see his parents after almost 7 weeks and to give them a hug. Tears flowed. Not even 10 minutes later he was back in the car and we drove home.

After an eventful and emotional morning, he went straight to bed and took a long nap.

I hope we have found our routine and we can continue on this positive élan.

No doubt there will be difficult moments in the future. But right now we savor this small win.